20 Feb

National Survivor User Network (NSUN) Bulletin – 17 February 2020

Welcome to the Monday 17th February 2020 edition of our weekly ebulletin – full of news, views, events and involvement opportunities.
Help and support
If at any time you need immediate support you can find out where to go, who to call, where to get information from here 

Bulletin items
If you would like to send us an event, involvement opportunity, blog article or anything else to share with the wider network in the bulletin, please email us at info@nsun.org.uk.
You can view our previous NSUN weekly bulletins and subscribe to get them sent directly to your mailbox here.
This bulletin is FREE. You can join as a member here – it’s free for individuals and user-led groups. If you would like to make a donation to help support the continuation of this work you can do so here.
Please note: Sharing is not endorsing
Sometimes, we may feature items that you (and we) may not necessarily agree with but we feel it’s important to make our members aware of what is happening out there. 

Our work
A great way to have a look at what’s been happening over the last year is to go to our News pageand visit the pages below.
I’m delighted to share a new blog (in two parts) by Alison Faulkner: the Inconvenient Complications of Peer Support. It traces the development of peer support and the divided paths it now faces, and reflects on how common ground might be found.
I also wanted to give you an update on a local campaign on stepping down (or discharge pathways) which is being led by Manchester Users Network. There will be a public meeting on stepping down on Thursday 19th March 2020,1.30pm, at Harpurhey Neighbourhood Project Centre in Manchester. Please contact the Manchester Users Network for more information.
Warm wishes
Akiko Hart
pronouns: she/her
akiko.hart@nsun.org.uk | @AkikoMHart 

Featured blogs and articles
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We are always looking to feature members’ blogs and articles so please email us at info@nsun.org.uk if you would like to share yours.
In The Guardian 

The United Nations International Covenant on Civil and Political Rights
NSUN’s submission to the United Nations Human Rights Committee
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The International Covenant on Civil and Political Rights (ICCPR) was adopted by the United Nations (UN) in 1966. It is internationally recognised and was signed by the UK Government in 1968. The ICCPR covers civil and political issues such as self-determination; anti-discrimination; the right to life; freedom from torture and inhumane treatment; liberty and security; equality before the law; freedom from arbitrary and unlawful interference in one’s personal life; the right to hold peaceful assemblies, join trade unions and take part in public and political life. These rights are set out in a series of Articles. You can find more details here.
Because the UN’s Human Rights Committee is now due to re-examine the UK government’s progress with the ICCPR, NSUN has sent a submission to the Committee. The submission was put together by Dorothy Gould, on NSUN’s behalf, and covers issues for people with lived experience which the government needs to address. The submission draws on NSUN’s Manifesto and so has a particular focus on our right to self-determination, to be treated without distinction and to be free from inhumane and/or degrading treatment.
You can find a copy of the submission here, and/or, for more information, please contact Akiko Hart at akiko.hart@nsun.org.uk 

ROFA conference 2020. Post election – what now?
Conference to plan the future of our movement & campaigns
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Join Reclaiming Our Futures Alliance for our annual national conference in Manchester where we will be discussing “Post election: what now? Planning the future for our movement and campaigns”.
We will be sharing and coordinating campaigns and common issues we need to address and we want to hear from you!
The conference is open to all members of Reclaiming Our Futures Alliance and to Deaf and Disabled led organisations and campaigns groups and networks who are interested in working together to protect and advance our equality and inclusion. The event is for Deaf and Disabled people and Deaf and Disabled People’s Organisations across England.
Date: Wed 22 April 2020, Free
Time: 10am – 4pm
Friends Meeting House, 6 Mount Street, Manchester M2 5NS
Click here to find qout more anqd book your free ticket. 

Societal Reconciliation with Mad Activism: Challenges and Possibilities
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Soteria in the Pub event in Hove, featuring Mohammed Abouelleil Rashed, author of Madness and the Demand for recognition.
Date: Wed 18th March 2020
Time: Door time 7pm, Start time 7.30pm
Location: The Brunswick, 1 Holland Road, Hove BN3 1JF
Find out more and get tickets here 

Co-production: teasing out the tensions
By Involve
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Co-production in health and social care research has the potential to increase equality, fairness and inclusivity in order to influence research for the better.
Co-production is said to be both a means of evolving and improving public involvement in research and also of ensuring that research is more closely aligned and responds better to community needs and expectations.
Co-production can present challenges to established ways of doing research. It raises questions, for example about power sharing, ethics, intellectual property and how co-produced research should be shared across society.
We invite you to be part of the conversation that helps bring these tensions into the light and share suggestions of how to approach them so that we can learn to embrace and work with them and each other more effectively.
Date: Wed 26 February 2020
Time: 10.00 – 16.00
Location: National Council for Voluntary Organisations, Society Building, 8 All Saints Street, London N1 9RL
Find out more and get your ticket here 

Talking Social Prescribing with Sir Sam Everington
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This week Hugh Aughterson talks to Sir Sam Everington, GP at the pioneering Bromley by Bow centre. They talk about social prescribing, personalised care, the evolution of the centre and the need to transform General Practice and doctor training.
This interview is part of a series of interviews with researchers and practitioners across the UK focusing on assets for mental health within communities, the arts, and culture.
Sharing power: sustaining the roots of peer support in statutory services
Half-day event organised by Mind in Camden
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This afternoon we’ll be reflecting on the value and challenges of setting up and facilitating Hearing Voices peer support groups in institutional settings:
  • Can a ‘real’ Hearing Voices group take place in statutory services? Or is their radical nature too diluted?
  • What are the particular challenges of facilitating a peer support group for paid staff, volunteers or service users?
  • Are there specific considerations for Hearing Voices groups in youth services? How do we safeguard yet allow for positive risk taking in these types of groups?
  • What can we do if we feel we’re the only one in our community, organisation or workplace with an interest in Hearing Voices groups or other ‘alternative’ approaches?
Date: Monday 24 February 2020
Time: 13.00 – 17.00
Location: Kingsley Hall Community Centre, Powis Road, London, E3 3HJ
Power Sharing project
Get involved
Article ImageWe know that people are often inspired to be change makers because of something they, or their community, have experienced.
Yet organisations campaigning to tackle poverty and inequality in London don’t always share power meaningfully with people with lived experience. Why is that? And what would it look like if civil society was better at sharing power in pursuit of social change?
In the Social Change Project we found that civil society is at its best when it is sharing resources and power. We want to help London’s civil society open up and shift power to people with direct experience of poverty and inequality, to create a better balance between lived and learnt experience.
Because SMK believes that every should be able to shape their world.
SMK will host a conversation over the next two years, but we need you to join in. Just like the Social Change Project, it will be driven by a Community of Practice from across civil society – people with lived and learnt experience who want to change the way things work.
Find out more about the Social Change Project and get involved here 

Solutions for Loneliness in Norwich
Love Light Labs
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Norwich is one of the friendliest cities in the UK, yet research reveals it’s actually one of the loneliest. It’s time that changed!
About this Event
To mark the launch and celebration of Love Light Norwich, we will bring the community and key organisations together and find solutions that will build a stronger, more social and more connected city.
Date: Thu, 13 February 2020
Time: 12:30 – 17:00 GMT
Location: OPEN Norwich, 20 Bank Plain, Norwich, NR2 4SF
Find out more and register for free here 

A People’s Guide to Care (Education) Treatment Reviews
People First Cumbria
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Come along and find out about Care and Treatments Reviews (CTR’s) and Care, Education and Treatment Reviews (CETR’s).
About this Event
We would value your input to co-produce the “Peoples Guide to Self Advocacy” for Cumbria.
If you are a person with a learning difficulty or autism, parent/carer, medical professional or support staff then we would love to hear your thoughts, views, needs and opinions.
Date: Fri, February 14, 2020
Time: 1:00 PM – 4:00 PM
Location: People First Independent Advocacy, Milbourne Street, Carlisle CA2 5XB
Study on feelings of shame around self injury
Uni of Manchester
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My name is Alexandra Brown, I’m a Trainee Clinical Psychologist at the University of Manchester. I am currently running a study focusing on experiences of shame in people who self-injure. Although this is a small scale study, it is hoped that the results of this study may contribute to much-needed literature around this emotion, and how it could be targeted in therapeutic interventions in the future.
The study is called the Mixed-Methods Investigation of Shame in those who Self-Injure (or MISSI Study for short), it has received HRA approval and ethical approval from Greater Manchester West Research Ethics Committee (REC reference 19/NW/0340, IRAS project ID 237135) and this study is approved to run across Merseycare NHS Foundation Trust, Greater Manchester Mental Health NHS Foundation Trust, Pennine Care NHS Foundation Trust, and third sector services.
I am looking for participants aged 16-25 who self-harm, and who own a smartphone. For participants, the study would involve:
  • Emailing MISSIstudy@manchester.ac.uk to express their interest.
  • A brief telephone screen to check eligibility and practical issues, such as where to meet in person
  • A face-to-face meeting (usually under an hour), where they would be asked to complete questionnaires around self-harm, shame and mood. They would be given brief instructions on how to complete brief electronic diaries three times per day using their smartphone, for a period of two weeks.
  • I would phone the participant approximately two days after they start the diaries to check in around any practical issues, but most importantly how they are feeling while completing the diaries.
  • I would collate the diary data after the two week period and develop a personalised interview for the participant based on their diary experiences. We would meet face-to-face for approximately one hour. Participants would be welcome to have a copy of their diary data.
Participants would be reimbursed for their time with a £30 love2shop voucher. Although we cannot cover travel costs, I would endeavour to meet them at their home or close to their home (if appropriate).
4 participants are currently taking part in this study, and we are looking to recruit a further 6 participants. So far, participants have fed back that the study has been a positive experience for them.
Please email MISSIstudy@manchester.ac.uk for more info and to express your interest. 

Talk for Health
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It’s important to take care of our emotional wellbeing, just as it is to take care of our bodies. One way of doing this is to connect in a truthful and empathic way with others.
Anyone who wants to take care of their wellbeing and support others.
Come to a Taster. Then you can:
  • Come to TALK FOR HEALTH CAFES; continue talking for wellbeing and gain communication skills.
  • Do our in-depth 4-day Talk for Health Programme.
  • Follow these with ongoing groups for strong peer networks.
It’s all FREE and is commissioned by the NHS. You will learn and have space for:
  • Honest talking – being the real you
  • Empathic listening
  • Basic counselling skills
  • How to set up and be part of an ongoing group to talk for wellbeing.
Register here to attend the next Taster or for more information contact info@talkforhealth.co.uk
Talk for Health Taster:
Date: Friday 6 March 2020
Time: 15:00 – 17:00
Location: Islington Town Hall, Upper Street, London N1 2UD 

Call for Participants for the Culturally-adapted Family Intervention Study
Focus Groups and Interviews
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The Culturally-adapted Family Intervention (CaFI) study is trialling a revised Family Intervention therapy tailored to the needs of people from African and Caribbean backgrounds with experience of psychosis and their families. The CaFI team is in the process of refining their intervention ready for trial. 

The CaFI team are looking for people from African and Caribbean backgrounds with experience of psychosis, and their friends, family and carers to participate in focus groups and interviews in February and March. This is to get feedback on the intervention, to make sure it is suitable for people from these backgrounds. These are happening in London, the Midlands, Manchester and Southampton.

This is a paid opportunity, and participants will be reimbursed travel expenses and a rate of £10 per hour. We anticipate that participation will take 1-2h.

Please see our website to find out more about the study, or contact Bliss.Gibbons@Covwarkpt.nhs.uk or 07771 971307 if you are interested or would like more information.

Jobs & Recruitment
User Involvement Coordinator
Jami provides practical and emotional support for people in Jewish communities who struggle with their mental health.
This is a new role for someone who has the experience and enthusiasm to lead on developing service user involvement across all levels of the organisation. You will help to develop and deliver an implementation plan which builds on Jami’s vision of a service which provides exciting and creative opportunities to enhance service user involvement and co-production across the organisation.
As a signatory of 4Pi National Involvement Standards Jami is committed to involving service users at every level of the organisation
For more information please contact Adam Ali on 020 8458 2223 or email Adam.Ali@jamiuk.org
Closing date:  Sunday 1st March 2020
We welcome and encourage job applications from people of all backgrounds.
Job description can be found here.
Young Person Co-Researchers
The McPin Foundation

Are you aged 18-24?
Are you looking to gain experience in mental health research and help to improve mental health services for young people?
This is an opportunity to join an ambitious and friendly team to support the Blueprint mental health research project. The Blueprint project is exploring services available to children and young people in England & Wales who are experiencing common mental health problems. It is funded by the National Institute for Health Research (NIHR) and run jointly by University of Manchester, Cardiff University and Great Manchester Mental Health NHS trust. The aim of the study is to identify ways to make these services more accessible and effective for those who wish to access them.
Find our more and apply here.
Closing date: 9am, Monday 16th March 2020.
Interviews will be held in London on Wednesday 25th and Thursday 26th March. 

Public Committee member
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The NIHR coordinating centres, Academy, Central Commissioning Facility (CCF), and NIHR Evaluation, Trials and Studies Coordinating Centre (NETSCC) are looking for members of the public to join a number of national and regional committees that prioritise and recommend health and social care research applications for funding.
Find out more and how to apply here.
Closing date: 1pm Monday 16th March 2020
PHR Prioritisation Committee members sought
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The Public Health Research (PHR) programme is seeking to appoint members to the Prioritisation Committee. This opportunity is for current voluntary/charity sector employees working at a senior level and/or with a breadth of experience and knowledge of public health issues.
You will find more info and advice on how to apply here.
Closing date: Friday 24th April 2020
Peer Support group volunteer 
Unreal are looking for a volunteer to help out at their monthly peer support group in London. Unreal is a UK charity for depersonalisation and derealisation disorder (DPRD).
Experiences of presence in grief: When relationships continue, what are the consequences?
Talk by Dr. Jacqueline Hayes
When: Tuesday 18 February 2020
Time: 17.00 – 18.30
Where: IMH seminar room, Caedmon Building, Institute for Medical Humanities, Durham University, Leazes Road, Durham DH1 1SZ
Find out more here. Free, all welcome. Wine and nibbles provided
Taking Control of Psychiatric Medication
The Living Room
Date: Wed, 19 February 2020
Time: 19:00 – 21:00
Venue: Niamos Radical Arts & Centre, Warwick Street, Hulme M15 5EU
Sharing power: sustaining the roots of peer support in statutory services 
Date: Monday 24 February 2020
Time: 13.00 – 17.00
Location: Kingsley Hall Community Centre, Powis Road, London, E3 3HJ
Fair Society, Healthy Lives (The Marmot Review) 10 years on
When: Tuesday 25 February 2020
Where: Church House, Deans Yard, Westminster, London SW1P 3NZ
More details will be available here.
Co-production: teasing out the tensions
By Involve
Date: Wed 26 February 2020
Time: 10.00 – 16.00
Location: National Council for Voluntary Organisations, Society Building, 8 All Saints Street, London N1 9RL
Find out more and get your ticket here.
Societal Reconciliation with Mad Activism: Challenges and Possibilities
Date: Wed 18 March 2020
Time: Door time 7pm, Start time 7.30pm
Location: The Brunswick, 1 Holland Road, Hove BN3 1JF
Find out more and get tickets here.
A Culture of Care: Culture, Health & Wellbeing Alliance national conference 2020
Date: Thu 19 & Fri 20 March 2020
Time: 10:00 AM (Thu) – 4:30 PM (Fri)
Venue: Derby Museums and Art Gallery, The Strand, Derby, East Midlands, DE1 1BS
Find out more and get tickets here. Concessions available.
Violence, Abuse and Mental Health Network meeting
Date: Tuesday 24 March 2020
Time: 10am – 4pm
Where: King’s College London.
For full details and to register your attendance, click the link here.
Evolving research through lived experience
CRASSH, University of Cambridge
Conference dates: Wednesday 25 & Thursday 26 March 2020
Further information is available on the CRASSH website.
Inaugural Open Dialogue Champions conference 2020
Developing Open Dialogue
Date: Saturday 28 March
Time: 10.30am – 4pm
Where: Central London
Free event. Details about the event here and event registration here.
ROFA conference 2020. Post election – what now?
Date: Wed 22 April 2020, Free
Time: 10am – 4pm
 Friends Meeting House, 6 Mount Street, Manchester M2 5NS
Click here to find out more and book your free ticket.
When: to 25 April 2020
Where: Bethlem Museum of the Mind, Beckenham, Kent
Where: Bethlem Gallery, Beckenham, Kent 

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