24 Jun

National Survivor User Network (NSUN) Bulletin – 22 June 2020

Welcome to the Monday 22nd June 2020 edition of our weekly ebulletin – full of news, views, events and involvement opportunities.
Help and support
If at any time you need immediate support you can find out where to go, who to call, where to get information from here

Bulletin items
If you would like to send us an event, involvement opportunity, blog article or anything else to share with the wider network in the bulletin, please email us at info@nsun.org.uk.
You can view our previous NSUN weekly bulletins and subscribe to get them sent directly to your mailbox here.
This bulletin is FREE. You can join as a member here – it’s free for individuals and user-led groups. If you would like to make a donation to help support the continuation of this work you can do so here.
Please note: Sharing is not endorsing
Sometimes, we may feature items that you (and we) may not necessarily agree with but we feel it’s important to make our members aware of what is happening out there.

Our work
A great way to have a look at what’s been happening over the last year is to go to our News pageand visit the pages below.
NSUN vacancy: Communications and Membership Officer
Apply now!
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NSUN is hiring!
We are looking for someone with relevant skills to deliver NSUN’s communication strategy and to liaise with our membership. Taking ownership of the communications function, and thinking creatively and working proactively will be an essential part of the role. The role is currently home-based. Specifically we are looking for someone with the following skills and experience:
  • Excellent written and oral communication skills, with experience of writing for a range of audiences/outlets including websites and social media
  • Proactive, flexible and responsive, with strong interpersonal and relationship management skills
  • Lived experience of mental ill-health, distress or trauma, with a passion for NSUN’s mission and work, and the ability to communicate it effectively to a wide variety of stakeholders
For more information and how to apply, please click here to go to our website.
Closing date: 5pm, Wed 1st July
Interviews: Friday 10th July (online)

Covid-19 links
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NSUN is a community of people and groups who come together to support each other.  We come together in many ways: physically, digitally through social media or through sharing information.
During these uncertain times, we will try and share with you what we can that is useful. In particular, we will think of ways of being together, when we can’t physically be together. And finally, we will continue our campaigning role, ensuring that policy and legislative changes are scrutinised and are rights based. 
Read more here:
NSUN Covid-19 fund *APPLICATIONS NOW OPEN* including an update on the Fund so far 
Articles, blogs, vlogs and more
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We are always looking to feature members’ blogs and articles so please email us at info@nsun.org.uk if you would like to share yours.
by Sarah Carr in Evidence & Policy Blog
in The Guardian
by Alice Smith, survivor and co-founder of 361 Life Support – an NSUN Covid-19 Fund grantee
By Lucy, in Mad Covid
In Disability News Service

DHSC Covid-19 VCSE partner update
Article ImageAs a VCSE partner of the Dept. of Health and Social Care (DHSC), NSUN now attends a fortnightly webinar where we are given updates on Covid-19. 
NHS Volunteer Responder scheme
If you or someone you know requires help with things like shopping, collection of prescriptions and the ‘check in and chat’ facility for those feeling lonely, you can now call the scheme directly on 0808 196 3646 (8am to 8pm). Currently you can’t self-refer online but this may change. For those who need help with transport e.g. to hospital appointments, you still have to be referred by the NHS, your local authority or via a local VCSE organisation. 
Please see the RVS website for more info and eligibility criteria. This list has been recently updated to confirm that if you are “vulnerable due to a mental health condition” you can access this service. 
Food for vulnerable people
Further conversations are taking place with Defra about access to priority supermarket deliveries (which are still oversubscribed) and a number of other commercial food box schemes they have collated in this guide.
We will update you on these items when we receive more news. In the meantime, if you have any questions you would like us to put to DHSC, please email us at info@nsun.org.uk

Food banks – find your local one and donate/help out
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Food banks are playing a very important part in ensuring people have enough food to eat in these challenging times.
If you are either in need of help yourself or would like to find out how you can help, find and contact your local food bank here:
Ways in which you can help include:
  • donate money
  • donate food
  • volunteer
  • become a business partner
Contact your local food bank to find out the best way you can help.

Hardship Fund for the Mentally ill during COVID-19
on gofundme
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“We are Jo Edge and Bethan Edwards, both survivors of mental illness and the psychiatric system. Jo is a doctor of medieval history, currently working at the John Rylands Library at the University of Manchester, beginning a stint as Women’s Rep on the National Executive Committee of the University and College Union in May 2020. Bethan is a Research OT employed by the NHS, and is also undertaking her PhD . She is professionally registered with the HCPC. Both Jo and Bethan are Welsh.
Money will only go to those who need it: folks who do not have access to other available funds from employers or through the government.
To apply for funds, please fill in this short online survey (also featured on the page below): https://www.surveymonkey.co.uk/r/73YNTCZ
To find out more, please click here.
You can read more about #MadCovidDiaries here or get in touch by email: madcovid@gmail.com.”

UBELE Fundraising Support Webinars for BAME community groups
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The Ubele Initiative is hosting bi-weekly Fundraising Support Webinars for BAME community groups.
Watch this page for the next webinar date.
Attend the webinar to learn more about the funders who are offering emergency funding and receive support for other fundraising queries you may have.
“We will focus on the following funding available:
  • London Community Response Fund – Ubele’s support for BAME organisations
  • BBC Children in Need COVID-19 Next Steps Grant
  • Edge Post Covid-19 Revival Fund – How to build back better
Find out more about these webinars here

LISTEN: Other Ways to Care
RadioCare for Antiuniversity 2020 
Article ImageOther Ways to care is a network of activists, researchers and practitioners practising solidarity and investigating alternative care models.
Check out this recording of RadioCare 12.06 for Antiuniversity Festival 2020 now available here and full script available on request from otherwaystocare@gmail.com
The recording includes a reading from Community Action to Inspire Hope in Durham, whose project was funded by the NSUN Covid-19 Fund

Covid-19 Impact on black, Asian and minority eArticle Imagethnic Prisoners, Prison Leavers and Families
“We’ve started corroding the experiences of prisoners, prison leavers & their families from black, Asian and minority ethnic backgrounds, inc. Gypsy, Roma & Traveller communities. We’re here to listen how Covid-19 has affected you & your loved ones.
Find out more about A Record of Our Own here.”

WEBINAR: Racism and Mental Health
LivPsych – Liverpool’s Student Psychiatry Society
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About this Event
“As a society, we want to highlight the perspective of mental health and psychiatry on racism in society. On researching this topic, we found that Black people and people from other Ethnic Minority groups in the UK were both more likely to be diagnosed with a mental health problem, and up to six times more likely to be admitted to hospital with a mental health problem. The risk of psychosis in Black Caribbean groups is estimated to be nearly seven times higher than in the White population. These statistics, along with research which suggests that experiencing racism in society (be that overt or systemic), can contribute to ill mental health, as well as evidence that Black people are treated differently once they enter mental health services, indicates that something has to change.
We hope this webinar will both educate and open up a discussion about both the effects of racism on individual’s mental health as well as institutional racism within psychiatry and mental health services.”
Speakers: Professor Suman Fernando, Hári Sewell, Alison Faulkner
Date: Thursday, 25th June
Time:  09.30 – 11.30am
Find out more and register for this free online event here

‘Impacts of social isolation among disadvantaged and vulnerable groups during public health crises’
New review 
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A new rapid review from the ESRC Centre for Society & Mental Health, King’s College London has been published.

“The review titled ‘Impacts of social isolation among disadvantaged and vulnerable groups during public health crises’ has been conducted in response to society-wide social distancing measures following the COVID-19 pandemic.

Both the 2-page summary and full review are available on the ESRC’s website and can be read here:
Full review 

We would like to specifically acknowledge and highlight the contribution from the centre’s researchers, Dr Charlotte Gayer-Anderson, Dr Rachel Latham, Dr Catherine El Zerbi & Dr Charlotte Woodhead.”

ROFA: Call out for views on campaign plan
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“Here is a link to the draft ROFA campaign plan which has been drawn up from all the contributions and discussions at our recent national ROFA conference that took place in April. 
We need your views on the draft campaign plan and what you can do to support and take forward the work detailed in it.
The campaign plan is divided into 5 themed sections:
  1. Independent Living and National Independent Living Service (NILS)
  2. National Disability Strategy
  3. Intersectionality
  4. Making Our Rights Real
  5. Covid19 – responses and post Covid inclusive recovery
Here is the link to all the other conference documents. These are a record of each of the conference sessions and discussions and the presentations from speakers.
As you will see there is a column on the right-hand side of the plan – “who can contribute what?” – which is currently empty. This campaign plan is only going to have an impact and make a difference to our lives if we all commit to doing what we can to support the goals and work detailed in the plan. We are a self-organising alliance so if something needs to be done, we need to do it!
If you can contribute and help take action then please join the themed campaign group(s) you want to support by adding your name in this box. Each campaign theme group will need a chair who will take responsibility for convening the groups using zoom and drive the implementation. Please also indicate in this box if you are prepared to chair/convene the campaign group you wish to join.
We will produce and share the final ROFA campaign plan together with details about each themed campaign group and how we can all work together over this next very important year.
As we emphasised at the conference ROFA is only as strong as our members make it through participation and action. We don’t have staff or funds to do this without you. We will support you through providing the social media platforms to communicate through but for it to truly live it has to be led by all of us together.
Please send your feedback to: info@rofa.org.uk by Friday 10th July 2020

ESA & Getting Paid for Service User Involvement
New guide published 
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This guide just published is for members of the public who are in receipt of income-related Employment and Support Allowance (ESA). The guide provides vital advice on how to follow the Jobcentre Plus procedures to receive payments, without any hassles, for service-user involvement or co-production on:
  • How you can start receiving up to £140 a week without affecting your Employment and Support Allowance or your Housing Benefit or Local Housing Allowance, Disability Living Allowance or Personal Independence Payment
  • How reimbursed expenses are ignored for service user involvement
  • How to fill in a Permitted Work form for service user involvement and avoid misunderstandings about your incapacity for work, mobility and care needs
  • When your payments will be treated as averaged across several weeks and about responsibility for tax.
The guide’s author, Judy Scott, is an independent welfare rights advisor who has advised the Department of Health, NHS Trusts and many UK-wide charities on how service users and carers who they involve in improving their services, and who are in receipt of state benefits, may be paid for their time without putting their only income at risk. Find out more at www.judyscottconsult.com
Find out more and order or download the book here

Children of the Cure: Missing Data, Lost Lives and Antidepressants
New book out
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“Children of the Cure tells the story of the only Medical Study that has two publications in the academic literature—telling precisely the opposite story—and how no one is bothered by this. Study 329 was a clinical study that began in 1994 giving a new antidepressant to teenagers. It has become the most famous clinical trial ever, leading to a fraud charge, a $3 billion fine, and a Black Box Warning. Despite now knowing that all trials of antidepressants done in children are negative, sales of these drugs to children and adolescents continue to increase dramatically.
This book is written by three members of the team—David Healy, Joanna Le Noury and Julie Wood—who have been behind writing the study and creating the website that hosts a set of documents pharmaceutical companies never expected you would get to see.
Find out more here.”

Self injury Support is still here for you 
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“We just wanted to let you know that during this very difficult time our text-based support services are still open and we are here to listen and support. Dealing with the current global situation on top of existing struggles with mental health is leaving people feeling more isolated than ever. Our TESS service offers emotional listening support for women and girls affected by self injury and a space where you can explore what is going on for you alongside a trained female volunteer with knowledge of self injury.
All of our services are open from 7pm – 9.30pm, Tuesday – Thursday.
You can:
Text us on 07537 432 444
Or start a webchat here . Webchats are for up to half an hour.
If you don’t know where to start just text or message ‘hello’ and we will be there with you. All our services are confidential and anonymous. We also have lots of self-help resources and information on our website here.”

Black Culture Book Gifting Scheme
on GoFundMe
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“In light of recent events around racism and inequality experienced by persons in the Black Community, Diversify Education would like to gift free anti racist and black culture story books to children between 4 and 16 years nationwide.
We have been able to gift a total of 21 books so far, however the requests are still coming and would love to continue gifting these worthwhile books to as many children as possible.”
Find out more here

Zoom: Learning and practicing the basics
For adults with learning disabilities or autism
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These classes by ClearCommunityWeb are an opportunity to ask questions and practice some of the basic features of Zoom to then be able to access social groups and classes.
These classes are free. ClearCommunityWeb can offer 1 to 1 assistance the day before to help download Zoom if this assistance is required.

Registration via eventbrite below or contact info@clearcommunityweb.co.uk or call 07523 646 277

When: 25th June
Jobs & Recruitment
HEAR is seeking new trustees to help us move forward as we grow as a network and an organisation: a new Chair of Trustees, a Treasurer, and other trustees with the skills and interests to support our work going forward.
Please initially contact the Network Coordinator: christine@hearequality.org.uk
for more information. Find out more about HEAR here.
Underground Lights
Article ImageThe Underground Lights Board of Trustees meet at least four times a year and are responsible for the successful and legal running of the charity We’re a passionate and committed team – and we’re looking for people to help guide us towards success.
Find out more here

There are currently no face-to-face events. Please see listings above for virtual meetings.

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