11 Jan

National Survivor User Network (NSUN) Bulletin – 6 January 2020

Welcome to the Monday 6th December 2020 edition of our weekly ebulletin – our very first bulletin of the new decade!

Help and support

If at any time you need immediate support you can find out where to go, who to call, where to get information from here

Bulletin items

If you would like to send us an event, involvement opportunity, blog article or anything else to share with the wider network in the bulletin, please email us at info@nsun.org.uk.

You can view our previous NSUN weekly bulletins and subscribe to get them sent directly to your mailbox here.

This bulletin is FREE. If you would like to make a donation to help support the continuation of this work you can do so here.

Please note: Sharing is not endorsing

Sometimes, we may feature items that you (and we) may not necessarily agree with but we feel it’s important to make our members aware of what is happening out there.

Our work

A great way to have a look at what’s been happening over the last year is to go to our News pageand visit the pages below.

Wishing you all a very happy and healthy 2020 🙂



We’ve been sharing updates about the changes at NSUN leading up to the New Year. This included A ‘long’ goodbye from Sarah Yiannoullou who will be working with the incoming CEO Akiko Hart over the next few months to handover. You can read Akiko’s message to the NSUN members here.

Member Soap Boxes now on our YouTube Channel

You can now view all of the Soap Boxes from this year’s AGM and Menbers’ event.  A video of the event and this year’s theme ‘The Value of User-led Groups’ will be available soon.

Meet the NSUN Trustees

Following the October 2019 Members’ Event and AGM we have a full complement of Trustees (12) on the NSUN Board. You can browse our Trustee profiles hereNext year we will be reviewing the NSUN Articles of Association in order to look at what needs updating, particularly section 12 through to section 19.

Mental Health Act Review campaign

Over the last few months, NSUN has continued campaigning with other user-led groups for major changes in the Mental Health Act Review recommendations, to bring them in line with full human rights under the United Nations Convention on the Rights of Persons with Disabilities. 

We now have a one-page campaign sheet which can be used to encourage still more individuals and organisations to sign up to our campaign.

Download the Easy Read version here.

Find out how you can support the campaign and help lobby your local MP here.

SRN is on Twitter!

Mental health knowledge built by service users and survivors. The Survivor

Researcher Network (SRN) has a new Twitter account. You can find us at @SurvivorResNetFind out more about SRN and how to join here.

Featured blogs and articles

The CALMED Trial: A call for ACTION!

Published by Recovery In The Bin (RITB)

BLOG UPDATED! 23.12.19

Outlines amendment made to inclusion criteria re Borderline Personality Disorder (BPD) severity. Includes Health Research Authority (HRA)  update report  RITB initial response.

Towards an institute for patient-led research

The intellectual legacy of Rosamund Snow

By Trish Greenhalgh

Published TheBMJOpinion 12.11.2019

You can read some of our previously featured blogs here.

Suicide on the Job Site: Inside the construction industry’s attempt to finally confront its mental health crisis

By Tilly Grove, a freelance journalist in London who writes about gender, mental health, sex work, housing and life stuff.

First published by MEL Magazine February 2019 


Leeds Survivor Crisis Service: A year of change

Communications Support Worker (since January 2019) and Connect Helpline Worker (since June 2019) Tom Dent-Spargo reflects on 2019, a year of big changes for him as he integrates fully into the world of Leeds Survivor Led Crisis Service.

Published 31 December 2019

National Voices: The end of the year!

Chief Executive @CharlotteAugst shared her reflections of 2019 in her December blog.

Newly appointed NSUN CEO, Akiko Hart joins the National Voices Board in 2020 for a three year term and shares her hopes as a new trustee here

HEAR looking for new trustees

Early in 2019 HEAR Equality and Human Rights Network were joined by 3 more trustees, bringing valuable new perspectives and skills. Core funding was secured from City Bridge Trust until 2024, as well as new project funding from the National Lottery Community Fund, and continued support from Trust for London.

HEAR now want to consolidate this exciting period by adding new trustees to their board. They particularly need someone with financial skills, but want to hear from anyone who feels that they could contribute positively to the governance of HEAR, and their work fighting for equality and human rights in London.

The HEAR Annual General Meeting and Network Meeting is taking place on 23rd January 2020, at 10am for 10.30am, to 12.30pm, followed by networking refreshments until 1pm.

At: Conference Room, Voluntary Action Islington, 200a Pentonville Road, N1 9JP

If you would like to express initial interest in becoming a trustee, or simply want to find out more, please in the first instance contact the Coordinator:

hear@hearequality.org.uk or 0207 832 5817

Bristol Survivors Network: Monthly Social Meetings

Each month the Bristol Survivors Network has a social meeting at the The Cafe, The New Room, Broadmead and a business meeting at The Sportsman, 40 Colston Street.

Our social meetings are the best place to find out about our group and a chance to talk about concerns.

They don’t offer a counselling or crisis service, however they do offer peer support from others who will try to understand.

Dates for upcoming meetings:

  • Social meeting, Friday, 10th January, 2020 , 2-3.30pm at The Cafe, The New Room, Horsefair, Broadmead, BS1 3JE. More info  here
  • Social meeting, Friday, 7th February, 2020 , 2-3.30pm at The Cafe, The New Room, Horsefair, Broadmead, BS1 3JE. More info here
  • Social meeting, Friday, 6th March, 2020 , 2-3.30pm at The Cafe, The New Room, Horsefair, Broadmead, BS1 3JE. More info here

Child Bereavement Charity Launches Crisis Text Service

A free crisis text service for children and young people struggling to cope with the death of a loved one was launched before Christmas.

Winston’s Wish – the UK’s first child bereavement charity – has launched the free, confidential and anonymous text line, called Crisis Messenger, to help children and young people who find themselves feeling unable to cope and in need of urgent support.

The service, which is powered by trusted partners Shout and Crisis Text Line, can be accessed by texting WW to 85258, and will be accessible at any time of day, on every day of the year.

By texting this number the person in crisis will be connected to a trained crisis volunteer who, through a completely anonymous text conversation, will aim to de-escalate the person from a place of crisis to a place of calm.

Talk for Health wellbeing programme taster

It’s important to take care of our emotional wellbeing, just as it is to take care of our bodies. One way of doing this is to connect in a truthful and empathic way with others.

Anyone who wants to take care of their wellbeing and support others.

Come to a Taster. Then you can:

  • Come to TALK FOR HEALTH CAFES; continue talking for wellbeing and gain communication skills.
  • Do our in-depth 4-day Talk for Health Programme.
  • Follow these with ongoing groups for strong peer networks.

It’s all FREE and is commissioned by the NHS. You will learn and have space for:

  • Honest talking – being the real you
  • Empathic listening
  • Basic counselling skills
  • How to set up and be part of an ongoing group to talk for wellbeing.

Register here to attend the next Taster or for more information contact info@talkforhealth.co.uk or call 07826 148461.

Talk for Health Taster
Date: Thursday, 22nd January
Time: 6:00 – 8:00 pm
Location: Pirate Castle, Gilbey’s Wharf, Oval Road, London NW1 7EA

CHANGES: 12 step recovery programme Staffordshire

CHANGES is a user-led mental health charity providing a unique recovery service to those in mental distress, based on users attending weekly mutual help groups and following CHANGES 12 step recovery programme, (developed from 12 step in recovering from mental distress).

Find out more here


Help improve new doctors mental health training

PsychEDUp at SLAM 

  • Do you have lived experience of mental distress or illness?
  • Do you have opinions about the treatment you received?
  • Do you want to help shape the attitutes and skills of future doctors in mental health?

PsychEDUp is a course for medical students focusing on mental health care and its integration with physical health, with the aim of improving knowledge and attitudes of future doctors in treating people with mental health difficulties.

SLAM would like to invite service users to participate in improving the authenticity and relevance of the taught content and role plays on our course.

The initial meeting is being held 20th January 2020 from 6 – 7pm.

The link for registration of interest is here.

They are based in Camberwell, south London and provide reimbursement for time and travel.
They would particularly like to extend this invitation to people from black and minority ethnic groups and other marginalised people whose voices may be underrepresented in the discussion around mental health. They also welcome those who are critical of psychiatry.

Contact Psychedupsl@gmail.com for more information



ADHAR Project Leicester

Adhar Project was established for providing community support services to people experiencing mental health difficulties from the BAME community since 1989.

Adhar Project is governed by a board of nine trustees and is a user led charity. majority of the trustees represent the community we support and have themselves, experienced mental health difficulties.

Find out about the different groups, drop-ins and activities across Leicestershire here


The Art of Coproduction – A Guerrilla Guide

This pocket-sized fold-out guide is for all things coproduction!

Produced by We Coproduce it is ‘designed to generate conversation, ideas and debate with people who coproduce regularly as well as providing an easy access starting point for those looking to learn. It was produced in collaboration with NHS England and coproduced with a team of amazing people from across the country.’

Each single copy costs £3 for postage and packing. Place your orders here.

Spark up a conversation on Twitter at #ARTOFCOPRO @wecoproduceaa


Time to Change: Time to Talk Day 2020

Time to Talk Day 2020 is taking place on Thursday 6 February.

Receive a free Time to Talk Day Chatterbox and tips on running a Time to Talk Day activity. Each Chatterbox will include:

  • Posters
  • Tip cards
  • Conversation starters
  • Postcards

To help you get people talking, we’ve created two editable poster templates that you can customise and print out.

Click here to create and download materials

You’ll also receive a series of emails with tips on how to make the most of your Time to Talk Day activity and start stigma-busting conversations.

Find out more here


The Westminster Forum Policy event

Priorities for the NHS Assembly and delivering the NHS Long Term Plan

Date: Wednesday, 5th February 2020

Time:  9am – 1pm

Location: Central London

Concessionary rates and Complimentary tickets are available. See here.


Chris Hopson, Chief Executive, NHS Providers and Member, NHS Assembly

Professor Tim Briggs, Chair, Getting It Right First Time and National Director of Clinical Improvement, NHS England and NHS Improvement

Professor David Hunter, Emeritus Professor of Health Policy and Management, Institute of Health Population Sciences, Newcastle University


James Bullion, Norfolk County Council; Dr Karen Eastman, Horsham and Mid Sussex CCG; Professor Sian Ellard, NHS Assembly; James Hawkins, NHS Digital;

Dr Karen Kirkham, NHS England and Lucy Watts, NHS Assembly

Follow on @WHFEvents | This event is CPD certified


VCSE Health and Wellbeing Alliance news

Supporting ageing carers as they become less able or unable to care

Carers Trust is leading on a piece of HWA additional work around Carers in changing circumstances, who are aged 50 or over. As part of this, they are running two surveys – one for carers and one for services that support carers (even/especially if these services wouldn’t call themselves carers services).

Find out more about the VCSE Health and Wellbeing Alliance here.


Events reminder

Loneliness and Social Isolation in Mental Health Research Network Symposium

When: 08 January 2020

Time: 09:30 – 15:00

Where: Jeffrey Hall, Level 1, UCL Institute of Education, 20 Bedford Way. London, WC1H 0AL

Register for a place here.


Mind, State and society1960-2010 – Half a century of UK psychiatry and mental health services

When: Tuesday 14 January 2020

Time: 8:45am to 5:10pm

Where: Royal Society of Medicine

Book here.


Happy Heads Winter Warmer – Mental Health Event

When: Saturday, 18 January 2020

Time: 13:00 – 17:00
Where: New Life Croydon, 5 Cairo New Road, Croydon, CR0 1XP

Find out more about the event here


Politics of Participation in Mental Health

When: Wednesday 22 January 2020
Time: 11:00 – 16:00 
Where: University of Essex Colchester Campus, Wivenhoe Park. Colchester , CO4 3SQ

Find out more here.


Children, Young People and Psychosis: Beyond Early Intervention

ISPS UK Conference and AGM

When: Friday 24 January 2020

Time: 10:00 – 17:30 

Where: Human Rights Action Centre, 17-25 New Inn Yard, London, EC2A 3EA

Find out more and book tickets here.


Fair Society, Healthy Lives (The Marmot Review) 10 years on

When: Tuesday 25th February 2020

Where: Church House, Deans Yard, Westminster, London SW1P 3NZ

More details will be available here.


Evolving research through lived experience

CRASSH, University of Cambridge

Conference dates: Wednesday 25 & Thursday 26 March 2020

Further information is available on the CRASSH website.


HCUK Conferences  

Healthcare (HCUK) Mental Health events

For all the latest upcoming healthcare conferences, please visit HCUK Healthcare conferencesHere are some of the upcoming mental health events:

For a 20% discount quote ref: HCUK20NSUN when booking.

For news and event updates follow on Twitter:

@HCUK_Clare for healthcare @SCUK_Kerry for social care



HRH Duke of Cambridge and football legends champion mental health
PHE launched a new Every Mind Matters film on Emirates FA Cup third round weekend. Read more here.

Government confirms extra support for Troubled Families to succeed
Up to £165 million new funding to help families get their lives back on track announced. Families with deep rooted problems will receive much-needed support to get their lives back on track with up to £165 million of new funding, Communities Secretary Rt Hon Robert Jenrick MP announced 5 January 2020. Read more here.

Public Health England Strategy 2020 – 2025

This strategy sets out Public Health England’s priorities for the next 5 years. ‘It outlines PHE’s role within the public health system, 10 priorities where PHE will focus particular effort and the areas where PHE will build capability within the organisation to support delivery of its strategic objectives and wider activities.’

You can download the brief executive summary of the document and the full version of the strategy here.

Health and Social Care staff and senior leaders among those praised in New Year Honours
The Department of Health & Social Care (DHSC) ministers celebrate achievements and service across the health and care sectors. Read the full press release here.

You can read the full honours lists here.



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